The information contained in PKU World Link is for educational and informational purposes only. Consult your own qualified physician or other health care professional regarding your individual needs. 

This website is not moderated.  Contact that is made as a result of using this website (emails, in person meetings, etc.) is the sole responsibility of the website user.

External links to other websites are supplied for convenience only.  Users of external links from this website are responsible for checking the accuracy and completeness  of all information contained in those links. 

If a child  requests to have their information added,  we use the parent’s e-mail address to notify the parent of their child’s registration request. The child's information will not be added to the website until we receive an email back from the parent allowing us to place the submitted information on PKU World Link.  At any time after permission has been granted, the child or the child's parent may request to have their/their child's information removed from pkuworldlink by emailing us.  

You/your child may use this website without adding your/your child's information on the website. When you elect to have your information added to the website, we ask you only reasonably necessary identifying information such as name, email address, and year of birth etc. so that you/your child may be placed on the appropriate map and people can locate you/your child either because of geographic proximately and/or age.  By registering, you/your child understand and consent that you/your child's name and information you provided  will be made public on the world wide web.  By submitting and/or utilizing information on  the PKU World Link web site, you/your child agree to hold me harmless  from any and all liability arising directly or indirectly from your/your child's submission and/or use of information contained in the web site.  If you have added your information and would like to change, update it, this can easily be done here. Please allow a reasonable amount of time for your information to be updated or removed.

Under no circumstances may the personal contact information or any other information that appears on PKU World Link be used for marketing or for research purposes. 

To the best of my knowledge, all  contents included in this site fall under the fair use or public domain guidelines of copyright law in the United States.  All contents cited with permission or quoted under fair use doctrine remain the intellectual property of their respective originators. Other contents are in the public domain, and are used with attribution.  If you believe that any material violates a copyright you hold or represent, we will immediately remove it upon notification.

Disclosure

I am an employee of Applied Nutrition Corporation, a manufacturer of medical foods and other products for people with PKU.  This website was constructed and is maintained and funded solely by me, a person living with PKU.